2019 AXYS Family Conference | Atlanta, Georgia | June 28-30


We hope to see you in Atlanta this June!




2019 AXYS Family Conference | Atlanta, Georgia | June 28-30


This will be our best conference yet. Top researchers and clinicians will share the latest knowledge so you gain a greater understanding of X and Y conditions and take home practical information about the conditions and how they affect all ages. No matter which condition exists in your family, we have the information you seek. This amazing conference includes:


  • Informative sessions with researchers, clinicians, experts and advocates. Check out the full agenda. Check back often as we add speakers and topics.
  • Social time to meet other families and get to know them. Often the most impactful conversations and connections happen at the pool or during a meal.
  • A warm, welcoming facility with indoor and outdoor spaces for both large gatherings and small quiet conversations.
  • A space for teens and adults with conditions that includes a bowling alley, pool tables and games.
  • Two days of sessions, conference materials and a delicious buffet lunch Saturday and Sunday.


Register Now

See the Conference Agenda

Book your hotel room


Financial Assistance Resources


  • To help families attend the conference, we created the Road to Atlanta “rewards” program. You can be rewarded with FREE conference registration, hotel accommodations or both when reaching the reward level you choose. If you are participating in the program and achieve your goal, AXYS will handle your registration and hotel room so no need to register or book your room beforehand. All you need to do is sign up and start fundraising today. (The Road to Atlanta fundraiser deadline is May 31.)
  • Please help those participating in the Road to Atlanta by making a donation. Click on this Road to Atlanta “rewards” program link and scroll all the way down to the donate button. Thank you in advance for helping families attend our conference.


Conference pricing:



  • Adult - $325
  • Adult/Teen with Condition - $225
  • Child (under 18) - $225
  • Student/Poster Presenter - $225 (Graduate students & trainees in related field of study)
  • Conference Hotel Rooms - $135/night


About registration


Registration is a two-step process. In the first step, you will provide AXYS with important information for the conference such as the information that will appear on your conference badge and your childcare needs, if any. Upon completion of this step, you will be redirected to a page where you will select your ticket type and quantity, then enter your payment information.


Please be aware that if you do not complete the entire process before closing or navigating away from any of the registration pages, you will not be able to resume where you left off and will have to enter all information again.


Visit the conference website for more information including:







PO Box 861
Mendenhall, PA 19357

888-999-9428 | Email | Website

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